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What Will Be!

What Will Be?

by Mark Lyons

Image by Gerd Altmann from Pixabay

SammySocks Etc. Blog - Comments and Observations from Someone Who Is a Retired Educator and the Father of Sammy (a Person with Autism). Visit us at www.sammysocksetc.com.

            What will be for Samuel? As parents of an autistic adult son, my wife and I always struggle with this.

            Have we done right by Samuel? We second guess our decisions about and for him all the time. Should we have done this or that differently? It is a constant battle with what is best for his safety, his independence, and his emotional state.

            Lots of people are ready and willing to offer advice. Many of these same people are also quick to judge decisions we have made for and about Samuel. But at the end of the day, they can go home to a neurotypically normal family.

            We have plans and provisions in place for Samuel once we are no longer able to care for him. But, as you know, the best laid plans …

What will be for Samuel?

            Our financial situation now is borderline. We make ends meet with a little to spare each month. I am retired now, and the margins will continue to get thinner and thinner. Life insurance policies that are affordable and pay significant benefits will disappear as we get older. Savings will dwindle.

            What will be for Samuel?

            Many families find themselves in similar circumstances. What will be for their son or daughter when parents are no longer able to take care of their adult child on the spectrum?

            Solutions? They are not easy to come by. Do we want family to be responsible? Do we want the government to help? Maybe the best solutions include a little of both. More and more autistic adults are getting older. Their parents also are aging and dying. This leaves other family members – siblings, aunts, uncles, nieces, nephews, cousins – to take responsibility both financially and physically. It is a responsibility that should not be taken alone or without help.

            What will be for Samuel?

            There are places where people on the spectrum can turn to live and work. Most of them are only available to those who have the financial resources to afford them. For the vast majority of others, the choices are not as open. Again, this population – adults with autism – is growing larger and aging every day.

            What will be for Samuel?

            This is a tough piece to write but it is even tougher for the future of adults like Samuel and their families.

            What will be for Samuel?

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